\nDue to Covid and Help syndrome, Deborka was born in the 28th week of pregnancy and is the first baby born with Covid in Europe to have survived. As a result of the premature birth, Deborka suffered seizures and severe grade 3 and 4 haemorrhages in her brain. On the third day after her birth, we were told to prepare for the worst. In the end, Deborka pulled through and, after 14 days, underwent her first operation, followed by 1\u20132 lumbar punctures a day (they had to drain the cerebrospinal fluid so that it wouldn\u2019t put pressure on her brain and cause further damage) as required. She also had serious problems with feeding, which meant she was on a central line for a long time and was at risk of infection. After 100 days, we were finally discharged home, but we had to return to hospital, followed by another operation. During this, a VP shunt was fitted. Some time later, she was diagnosed with grade 1 cerebral palsy.
\nDeborka is making great progress now. Her motor skills have improved and she\u2019s speaking better. On 16 October 2024, at the age of three and a quarter, she made the greatest progress we could have hoped for: she started walking.
\nWe still go to the spa in Klimkovice twice a year for a month, where she does intensive exercise. She has 6\u20137 treatments a day. We\u2019ve recently started paying extra for the more intensive Reha Motion programme, which involves a full hour with a therapist instead of half an hour.
\nThroughout the year, she attends exercise sessions at Balanc Therapy 3\u20134 times a week.
\nThese include occupational therapy, physiotherapy and sensory integration. Deborka really enjoys these therapies and always looks forward to them. This programme is very comprehensive; it aims to improve her gait, correct her posture and address her flat feet, as well as helping her to get dressed, put on her shoes and perform other everyday tasks.
\nWe still go to Borovany once every 14 days for physiotherapy; these are the only sessions covered by insurance. Here, they focus more on his legs (valgus ankles and walking on the tips of his left foot); we also discuss orthopaedic aids with them (shoe insoles and braces \u2013 these are not covered).
\nEvery day, she wears inflatable braces for an hour and a half to two hours (depending on how she gets on), which also help with stretching. We also try to do as many exercises with her as possible at home.
\nAs well as doing exercises, we are still under medical supervision in the neurology, ophthalmology and endocrinology departments. A counsellor from Early Care visits us.
\nWe\u2019re doing our best to ensure that Deborka\u2019s health-related challenges are kept to a minimum. Our latest major achievement is that she\u2019s now nappy-free both during the day and at night. Unfortunately, she\u2019ll need further operations in the future, but we hope there will be as few as possible.<\/p>\n
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Na na\u0161i st\u0159echu doraz\u00ed Petr \u0160\u00edma, zn\u00e1m\u00fd \u0161\u00e9fkucha\u0159 z obl\u00edben\u00e9ho po\u0159adu Kluci v akci, kter\u00fd pro v\u00e1s p\u0159iprav\u00ed speci\u00e1ln\u00ed menu inspirovan\u00e9 televizn\u00edm po\u0159adem. T\u011b\u0161it se m\u016f\u017eete na skv\u011bl\u00e9 delikatesy p\u0159ipraven\u00e9 p\u0159\u00edmo z rukou zku\u0161en\u00e9ho \u0161\u00e9fkucha\u0159e, zaj\u00edmav\u00e9 pov\u00edd\u00e1n\u00ed ze z\u00e1kulis\u00ed nat\u00e1\u010den\u00ed, autogrami\u00e1du i mo\u017enost zakoupit si novou kucha\u0159ku Kluk\u016f v akci. A proto\u017ee dobr\u00e9 j\u00eddlo m\u016f\u017ee […]<\/p>\n","protected":false},"author":2,"featured_media":3182,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-3181","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"_links":{"self":[{"href":"https:\/\/strechabudejc.cz\/en\/wp-json\/wp\/v2\/posts\/3181","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/strechabudejc.cz\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/strechabudejc.cz\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/strechabudejc.cz\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/strechabudejc.cz\/en\/wp-json\/wp\/v2\/comments?post=3181"}],"version-history":[{"count":3,"href":"https:\/\/strechabudejc.cz\/en\/wp-json\/wp\/v2\/posts\/3181\/revisions"}],"predecessor-version":[{"id":3199,"href":"https:\/\/strechabudejc.cz\/en\/wp-json\/wp\/v2\/posts\/3181\/revisions\/3199"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/strechabudejc.cz\/en\/wp-json\/wp\/v2\/media\/3182"}],"wp:attachment":[{"href":"https:\/\/strechabudejc.cz\/en\/wp-json\/wp\/v2\/media?parent=3181"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/strechabudejc.cz\/en\/wp-json\/wp\/v2\/categories?post=3181"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/strechabudejc.cz\/en\/wp-json\/wp\/v2\/tags?post=3181"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}